A Few Updated Photos

I'm so glad when Josh gets home from work. He's such a great Dad; always holding one or both girls so that I can make dinner, clean up, or go to the little girls room (that doesn't happen often when I'm alone without an extreme amount of crying).

We had a Super Bowl Party at our house. Each couple (in our case family) had to make half time and final score predictions. Josh and I were closest for both and won the football and jerseys.

Kate really enjoyed watching the game.
My girls like to hold hands when they get close and other times they like to hit each other.
Girls are so much fun. I can't believe how many cute accessories they have for them.
Madisyn loves things on her head.
Including Daddy's Hat

Do you suppose Kate thinks that the bow is too heavy?

The girls are so much fun. It's great to dress them up and play with them. They are starting to interact more. Today Kate was all smiles, she'll smile at anyone. However, Madisyn only has eyes for her Dad, he's the only one able to get her to smile. It's the cutest thing. The girls like to play with these little bugs that my Mom bought for them. This morning Kate was yelling at her bug, I couldn't help but laugh. It's awesome to see them growing and developing like they are. I can't believe how much they have changed since they were born.

Tomorrow we have their two week checkup which means shots. I think that I am more scared than I would be if I were the one getting the shots. Because of Madisyn's condition we have to give her Tylenol around the clock starting tonight so I'll let you all know how that goes. Lucky for me Josh is off all weekend so at least I wont be alone with two screaming babies. I also plan to let him be the one to hold them during their shots, that way I can be the one that makes it better.

We had some pictures taken of them by my cousins Mom last week. They are adorable, I can't wait to get the CD so you all can see how adorable they are. We redid some of their newborn pictures that we took once we got home since not many of them turned out very well (it was cold and they were crying). You can view a few of them at http://www.davidandgoliath20022003.blogspot.com/ In case you can't read their little shirts they say "I look like the mailman" (I made them at the last minute).

I have some sad news that is really a blessing. I will be going back to work two days a week at Granite Credit Union. I was hoping that I wouldn't have to but unfortunately money doesn't grow on trees and you can't live on love. So, I'll be going back on Mondays and Fridays. I'm grateful that they were willing to work with my schedule seeing as it is so specific. Josh's Mom will be watching the girls on Monday and my Mom will be watching on Friday. I think Heavenly Father is looking out for me.

It's A Beautiful Life

I hadn't planned to share this news with anyone outside my family. It's not that I was ashamed of it, although I do feel somewhat responsible, I just never wanted anyone to look at my little angel differently. I've never been more scared in my life as I was the day I found out Madisyn had MCAD Deficiency. I felt like I had just been run over by a bus and I was laying there still feeling the tires run over me, crushing my diaphram so I couldn't breathe. The correct terminology is Medium Chain Acy CoA Dehydrogenase Deficiency. It's a genetic condition in which her body doesn't know how to convert Medium Chain Fats into Energy. It's a manageable condition but its going to make her life difficult. I can't help but feel pain everytime she does after she takes her medicine or throws up. It makes me feel like my perfect baby shouldn't have to feel sick like she does. It angers me that I have to keep her away from other kids to avoid her exposure to illness, because a fever guarantees me a trip to the ER. The doctor has given me an Emergecy Letter to carry around in case she does go into a "Metaboilc Crisis" so the doctors will know how to help her (it's so rare they don't know what to do without being told). It effects 1 in about 15000 people, usually 5 or 6 born per year. I am grateful to have a knowledgable pediatrition who has made himself familiar with her condition so he can help with her treatment.

I look at her beutiful face and wonder what hardships she will endure in her life not necessarily as a result of MCAD. I want to sheid her from the world and make her life beautiful. As I look around and count all the blessing the Lord has given me I can't be bitter. There are children born with far worse challenges than my child; but it's still my child and she will suffer. I promised myself that she would never see my cry over this, she is no different that any other child, just has a special diet. She and Kate bring joy to my life unlike anything I have ever known, I love them more and more everyday. Just when I think I can't possibly love them more, I do. My life is beautiful, even with it's challenges.

Our Life

Just thought you all would like to know that this is what I do all day...

...and Josh does all night.