Sunday, June 27, 2010

Camping at the Spruces

We went camping up at the Spruces on June 5 with some of Josh's Family. It was the girls first camping trip. They seemed to have fun. They loved the fire and Kate was mezmerized by the sky. She kept grabbing for my marshmallow, I felt bad that I couldn't share with her.


Madisyn, Mommy, and Jonathan.

Daddy and His Girls


Madisyn thought that Connor was the the funniest thing ever.


Our Family.

We had so much fun even though we were only able to stay for one night, we can't wait to go again.







Our First Real Food

In Josh's family it seems to be an unspoken tradition for every Gubler kid to have Rubarb, this is our girls first experience. Hilarious.

Family Reunion

Josh's Family Reunion was the weekend of June 11th. We had a lot of fun just having dinner and talking with his family. His grandma was able to come and this is the first time she's seem our girls.

4 Generations

My Whole World
Katie, Josh, and Maddie


The "Great" Grandkids.




Wednesday, June 2, 2010

Blessings

While at work today I've had some down time and have done some blog surfing. My friend Ali has a friend who's baby just passed away from a rare genetic defect called SMARD. I was reading about it, it's an auto recessive gene passed from parent to child. Much the way Madisyn's MCADD is passed. In reading her blog I started feeling overly emotional. I feel so guilty for feeling down on myself because my daughter has a genetic condition which will affect nothing more than her diet once she gets older. Although she can die from her condition, she wont as long as we manage it. This woman's child and every child with the SMARD condition will die. They die a painful death from respiratory failure. I can't imagine looking at my child everyday wondering if today will be the day she dies, what a strong person it must take to deal with that fate. I admire them. My child is perfect even with her condition. Josh and I were talking yesterday as we were driving to Home Depot. On the side of the road in a front yard there was a Mother and Father and a little boy, maybe three, and he had a walker. They were trying to get him to walk from his Dad to his Mom. They looked so happy and proud of him. These last few experiences (the little boy, the blog, and the experience at PCMC) has made me realize how much of life I take for granted. I worry about things like laundry and dinner, not death or paralasis. This woman's blog posts are sad and angry but full of hope and the knowledge that her child is hers forever. I am more grateful now than I have ever been to have the gospel in my life and know that Josh and I will have our babies forever. There is no greater gift in the world.