Kaitlyn has been noticing herself in the mirror a lot more lately. Once in a while I catch her doing this...
She's working on her "kissy" face.
Tuesday, May 18, 2010
My Life is a Seinfeld Episode
Those of you who are Sienfeld Fans should remember the episode where Elaine is trying to get her medical records because it has some info in it that she doesn't want. She keeps going to different docs and they all read it and mention something about it or look at her strange...well I was Elaine while Madisyn was in the ER.
We got to the ER at Primary Childrens and the nurse that checked us in was a complete jerk. I told her about Maddie's condition and that she wasn't holding anything down because she'd been throwing up. The nurse just wrote down that she was puking but nothing about her condition. She told us to have a seat and they would call us in a minute. (*I carry an emergency letter with me at all times but was told that if I went to IMC or PCMC that they would already have it and I wouldn't need it, so I didn't provide it.) We were sitting there for 20 minutes. I am watching my daughter turn more gray and lethargic. I grab my emergency letter and take it to the counter, to a different nurse, and ask her to please take this to the doctor because she needs to be seen. The nurse read the letter and said she was sorry and they would get us back ASAP. She takes the letter in the back and I go back and sit down.
The door opens and out come the crappy nurse. She kept saying things like "You have been bumped to the front of the line, in front of everyone else waiting", we were the only people in the waiting room. I looked around and she said "There are other people ahead of you they're just waiting in another part of the hospital". (This is where my sarcasm steps in), I looked at her and said "What, they're hanging out in the cafeteria?". I'm sure she didn't appreciate my response but I didn't appreciate her treating us as if we weren't important. I was arguing with her for a few minutes because she was acting extremely rude considering she's working in the ER of Primary Childrens. Anyway, I told her that I wanted a different nurse, preferably one that was so indifferent. She left and we got called back about 2 minutes later, by her, and taken to our room. She said that our nurse would be in shortly, I was releaved, and then in walks the Social Worker. Yup - She sent me a social worker. With the way he was talking to me I was sure she must have told him I was some crazzed lunatic mother that needed calming down. Of course I was fine by that point and he only stayed about a minute. For the rest of our time in the ER every person that came in said that they were sorry about our earlier confusion and that they were appreciative of our patience when they weren't sure what to do for her. It was an experience that I wont soon forget, and if there happens to be a next time I will definitly give them my letter no matter what. They asked me to fill out a survey about my experience before they released Maddie, I was glad to that for them.
We got to the ER at Primary Childrens and the nurse that checked us in was a complete jerk. I told her about Maddie's condition and that she wasn't holding anything down because she'd been throwing up. The nurse just wrote down that she was puking but nothing about her condition. She told us to have a seat and they would call us in a minute. (*I carry an emergency letter with me at all times but was told that if I went to IMC or PCMC that they would already have it and I wouldn't need it, so I didn't provide it.) We were sitting there for 20 minutes. I am watching my daughter turn more gray and lethargic. I grab my emergency letter and take it to the counter, to a different nurse, and ask her to please take this to the doctor because she needs to be seen. The nurse read the letter and said she was sorry and they would get us back ASAP. She takes the letter in the back and I go back and sit down.
The door opens and out come the crappy nurse. She kept saying things like "You have been bumped to the front of the line, in front of everyone else waiting", we were the only people in the waiting room. I looked around and she said "There are other people ahead of you they're just waiting in another part of the hospital". (This is where my sarcasm steps in), I looked at her and said "What, they're hanging out in the cafeteria?". I'm sure she didn't appreciate my response but I didn't appreciate her treating us as if we weren't important. I was arguing with her for a few minutes because she was acting extremely rude considering she's working in the ER of Primary Childrens. Anyway, I told her that I wanted a different nurse, preferably one that was so indifferent. She left and we got called back about 2 minutes later, by her, and taken to our room. She said that our nurse would be in shortly, I was releaved, and then in walks the Social Worker. Yup - She sent me a social worker. With the way he was talking to me I was sure she must have told him I was some crazzed lunatic mother that needed calming down. Of course I was fine by that point and he only stayed about a minute. For the rest of our time in the ER every person that came in said that they were sorry about our earlier confusion and that they were appreciative of our patience when they weren't sure what to do for her. It was an experience that I wont soon forget, and if there happens to be a next time I will definitly give them my letter no matter what. They asked me to fill out a survey about my experience before they released Maddie, I was glad to that for them.
Monday, May 10, 2010
Madisyn's Visit to Primary Childrens
I had the worst Mother's Day this year. I am so grateful that I have the opportunity to be a mother to my children. They are the best things that ever happened to me. I never knew that I could love someone so unconditionally and completely. They bring me such joy and happiness. I am very blessed. They are the hardest job that I have ever done but they are the most rewarding.
Well.... I woke up at 4 on Mother's Day and fed Madisyn. Nothing was out of the ordinary, she ate, she burped, we went back to sleep. I woke up again at 8 for another feeding and once again she ate and burped. She stayed awake and played with Kate while Josh made me breakfast. I hear a little gaging and look on the floor to see Madisyn covered in puke. She did the same thing an hour later after I fed her a little. We then gave them a shower (that was interesting) and were getting ready for church. Once again she ate a little and puked all over. We decided against going to church since she was throwing up and all I would need is her to puke in Sacrament. She threw up again, rather violently, and fell right to sleep. That's a concern for me because that tells me that she's running out of energy, and you know thats a problem with her having MCAD Deficiency. I start to get concerned and I can see the concern in Josh's face as well. I decide that I would call the doctor since it's 1:00 and she hasn't kept anything down for far to long. I call the Metabolic Specialist which is of course an on call doctor. She takes my info and says to pack for the hospital and she'll call me back in 20 minutes. I pack like a mad man while crying. Josh is on the virge of tears, my Mom is crying, I can't even think straight; I'm a complete mess. She calls me back in 10 minutes and tells me to get to the hospital ASAP. I'm directed to go to Emergency and Primary Childrens and that they are waiting for us. (see follow up post entitled "My Life is a Seinfeld Episode" to hear about my Nurse experience). So after 6 hours in the ER with her throwing up two more times and receiving a catheter, IV, and having her blood drawn, she's admitted and we spend the night praying for her to start eating.
She was so tired the entire stay but the nurses in our unit did their best to play with her and they were crazy about her smiles and her toes.
Daddy feeding Madisyn on Monday morning before they would release us.
Maddie and Mommy. Look at her adorable little hospital gown, I didn't know that they made them that small.
They put her IV in and wrapped this hard cast with pink so that she wouldn't pull it out. This is what she looked like for most of the time we were there.
I was extremely grateful for the nurses and doctors who took care of my baby and helped her before anything bad happened. She went through a lot but she was a trooper, only doing a minimal amount of crying and smiling at everyone who came in to check her once we got to Monday morning. She was released Monday at 3:00 and we are taking her back for a followup appointment tomorrow. I guess you could say that it was the best and worst Mother's Day ever. The best part is that my baby is okay, I got to bring her home, and she and Kate are my whole life, along with Daddy, we love Daddy.
Well.... I woke up at 4 on Mother's Day and fed Madisyn. Nothing was out of the ordinary, she ate, she burped, we went back to sleep. I woke up again at 8 for another feeding and once again she ate and burped. She stayed awake and played with Kate while Josh made me breakfast. I hear a little gaging and look on the floor to see Madisyn covered in puke. She did the same thing an hour later after I fed her a little. We then gave them a shower (that was interesting) and were getting ready for church. Once again she ate a little and puked all over. We decided against going to church since she was throwing up and all I would need is her to puke in Sacrament. She threw up again, rather violently, and fell right to sleep. That's a concern for me because that tells me that she's running out of energy, and you know thats a problem with her having MCAD Deficiency. I start to get concerned and I can see the concern in Josh's face as well. I decide that I would call the doctor since it's 1:00 and she hasn't kept anything down for far to long. I call the Metabolic Specialist which is of course an on call doctor. She takes my info and says to pack for the hospital and she'll call me back in 20 minutes. I pack like a mad man while crying. Josh is on the virge of tears, my Mom is crying, I can't even think straight; I'm a complete mess. She calls me back in 10 minutes and tells me to get to the hospital ASAP. I'm directed to go to Emergency and Primary Childrens and that they are waiting for us. (see follow up post entitled "My Life is a Seinfeld Episode" to hear about my Nurse experience). So after 6 hours in the ER with her throwing up two more times and receiving a catheter, IV, and having her blood drawn, she's admitted and we spend the night praying for her to start eating.
She was so tired the entire stay but the nurses in our unit did their best to play with her and they were crazy about her smiles and her toes.
Daddy feeding Madisyn on Monday morning before they would release us.
Maddie and Mommy. Look at her adorable little hospital gown, I didn't know that they made them that small.
They put her IV in and wrapped this hard cast with pink so that she wouldn't pull it out. This is what she looked like for most of the time we were there.
I was extremely grateful for the nurses and doctors who took care of my baby and helped her before anything bad happened. She went through a lot but she was a trooper, only doing a minimal amount of crying and smiling at everyone who came in to check her once we got to Monday morning. She was released Monday at 3:00 and we are taking her back for a followup appointment tomorrow. I guess you could say that it was the best and worst Mother's Day ever. The best part is that my baby is okay, I got to bring her home, and she and Kate are my whole life, along with Daddy, we love Daddy. Monday, April 19, 2010
The Official Face of MCAD
We got confirmation today on the type of MCAD that Madisyn has. It's the Classic form which means that she has two mutations of the same gene. I was devestated even though I knew she had it. You can't tell that she has the condition just by looking at her, in fact, no one will ever be able to tell as long as we keep managing the condition. I thank Heavenly Father every day for living in the time that I do where we have the medical knowledge to help my baby. We found out she had the condition from the Newborn Screening the state does. I also found out that Newborn Screening is not something that every state does. The state of Utah only started testing for the 29 different genetic conditions two years ago, before that they didn't. I read a bunch of inspiring stories of people who fought for these tests in the United States and over seas. The March of Dimes is actually key in helping legislation get passed in other states so that this test is required. It saves so many lives when you get a diagnosis early and can manage these conditions. Much of the reasoning for these tests is because of parents who lost their children to conditions that could have been managed with something as little as a change in diet but weren't given the opportunity because these tests were not available. There are many states that still do not offer these tests, places like Arizona do not think it necessary. No child should suffer and die for something that can be managed. I urge you all to support the March of Dimes in their fight to get every newborn child screened for these conditions. It saved my daughters life, maybe it will save yours as well.
Pee On Her Face
Josh and I went to lunch with Aaron and Allison at KFC the other day. When Aaron was done eating he offered to take Kate from me so that I could eat, he's such a nice uncle. Anyway, when I was done and took her back he noticed his arm was a little damp. Sometimes the girls sweat a little so I said that she might have sweat on his arm. I gave him a napkin and he wiped it up and then went over to Allison and rubbed it on her face. I then noticed that his pants were wet. Yeah, she had a little accident on Aaron and he in turn put it all over Allison's face. I've never felt so bad or laughed so hard. It was a classic moment that will go down in my memory right up there with the "a...a...double B?" We love it.
Family Night
Once a month my family gets together for Family Home Evening. We usually have a lesson, last night it was provided by Andrea and Kyle, and then we do some sort of activity. Well, this month Kyle chose Croquet (I have no idea if that is spelled right). Anyway, Kyle beat us along with Aaron and Dan as a close second. Who knew that game could be so much fun?
Our Little Family
Andrea and Kyle (Ouch!)
My happy little Kaitlyn, she makes me smile.
Madisyn was on Daddy's team.
It was a little sunny outside, we did what we could.Friday, April 9, 2010
Never A Dull Moment
So today was one of my two working days this week. Most of you know that I work at Granite Credit Union; but are you aware that my branch is in a Walmart? Well, most of the day is somewhat fun because we can always find something to laugh about (usually resembling the "people of walmart" website. Check it out, it's funny). Anyway, today I did not have to make my own fun, people at walmart did it for me. My day went as follows:
1- We were discussing funny names of members and someone walked in right as Felisha was saying Jen Nettles. (say it fast...lol) I think we just about gave the poor lady a heart attack. Needless to say there wont be a high Member Service Score from her this month.
2- While walking the isles (we are suppose to be out recruiting members; but usually we just use it as time to shop and goof off; but don't tell the boss, she's grumpy) I ran into a lady who was super nice. She was over 6 feet tall and her boobs were right at eye level with me. Now, I'm so not a girl who goes around staring at other peoples boobs, and I know what it feels like for people to stare at mine; but I couldn't help it, they were gigantic. I'm talking huge. I could probably use one cup and cover my entire head, I totally thought "hum, I wonder if she uses 2 hats instead of a bra?" I know, rude right; but it just sort of popped into my mind and I couldn't help it. Poor girl, I was wondering if she knew that she could probably get her insurance to pay for a reduction, however I didn't think it appropriate to suggest so early in our relationship; maybe on the next store walking.
3- While out to lunch with Amy (we went to Cafe Rio ... yummy) we were walking to the car when I see a lady with her two daughters all decked out in Hello Kitty Garb. The pants looked like Pajamas but they were too short to be pants yet too long to be capri's. I wasn't sure what would possibly motivate this Mom to wear that junk. I think she's taking the "Dress Younger Like Your Daughter" to the extreme, or maybe she just likes Hello Kitty, I don't know, but I will give her the benefit of the doubt and assume she doesn't own a mirror.
4- I think that it should be a requirement to show a valid Drivers Licence in order to operate the motorized shopping carts in Walmart. A lady pulled into our branch. Now, we have a very narrow branch, not a lot of space for turning around (by not a lot, I really mean NONE). I help her fill out an application for a loan and find out she has no income. What? Why in the world would we give you a loan when you have no way to pay it back? Sorry, tangent for a later post. Anyway, when we were finished she floored the motorized cart while flying in reverse and rams right into the table that hold all our deposit/withdrawl slips and sends it flying into the checkstand across the isle. She just puts it in drive and turns to go while muttering "These things are dangerous". Of course, I'm thinking it's not the machine it's the operator; but I hold my tongue. It's already been a hilarious/judgemental day for me.
So Walmart has just reconfirmed my theory that some people should have to get a permit to reproduce.
1- We were discussing funny names of members and someone walked in right as Felisha was saying Jen Nettles. (say it fast...lol) I think we just about gave the poor lady a heart attack. Needless to say there wont be a high Member Service Score from her this month.
2- While walking the isles (we are suppose to be out recruiting members; but usually we just use it as time to shop and goof off; but don't tell the boss, she's grumpy) I ran into a lady who was super nice. She was over 6 feet tall and her boobs were right at eye level with me. Now, I'm so not a girl who goes around staring at other peoples boobs, and I know what it feels like for people to stare at mine; but I couldn't help it, they were gigantic. I'm talking huge. I could probably use one cup and cover my entire head, I totally thought "hum, I wonder if she uses 2 hats instead of a bra?" I know, rude right; but it just sort of popped into my mind and I couldn't help it. Poor girl, I was wondering if she knew that she could probably get her insurance to pay for a reduction, however I didn't think it appropriate to suggest so early in our relationship; maybe on the next store walking.
3- While out to lunch with Amy (we went to Cafe Rio ... yummy) we were walking to the car when I see a lady with her two daughters all decked out in Hello Kitty Garb. The pants looked like Pajamas but they were too short to be pants yet too long to be capri's. I wasn't sure what would possibly motivate this Mom to wear that junk. I think she's taking the "Dress Younger Like Your Daughter" to the extreme, or maybe she just likes Hello Kitty, I don't know, but I will give her the benefit of the doubt and assume she doesn't own a mirror.
4- I think that it should be a requirement to show a valid Drivers Licence in order to operate the motorized shopping carts in Walmart. A lady pulled into our branch. Now, we have a very narrow branch, not a lot of space for turning around (by not a lot, I really mean NONE). I help her fill out an application for a loan and find out she has no income. What? Why in the world would we give you a loan when you have no way to pay it back? Sorry, tangent for a later post. Anyway, when we were finished she floored the motorized cart while flying in reverse and rams right into the table that hold all our deposit/withdrawl slips and sends it flying into the checkstand across the isle. She just puts it in drive and turns to go while muttering "These things are dangerous". Of course, I'm thinking it's not the machine it's the operator; but I hold my tongue. It's already been a hilarious/judgemental day for me.
So Walmart has just reconfirmed my theory that some people should have to get a permit to reproduce.
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